No pictures of the following appt – psych NP. That’s always a fun one. Megan was great today and she’s transferring her practice but promises the only change for me will be location of office. I can’t handle loss of docs. I’ve been thru it too much.

Migraine today. Weather. Pathologic Lethargy. Came home and crashed. Children home from school and time to take Nick to music lessons.

I’ve made dinner. They can all eat while I go to bed. Nauseous and hurting. Yay.

Most interesting was as a relaxed with my eyes closed, I was sure I was hearing pouring rain outside the building when the bowl tones would quiet. At the end of the session I was shocked that it had not rained at all! Those bowls…They seem to create their own sounds. The tones were very loud and intense; my whole body reverberated and hummed. It was difficult for me to remember to breathe at times.

I love this and can relate so well. I thought I was so alone. It changed my life in 2014 to know others were struggling with the same disorder. I was no longer alone; I didn’t have to hide; I wasn’t the only freak.

Recently I invited a friend (who struggles with migraine) into a Facebook migraine support group. She was horrified at the thought: “I know I’m suffering but I don’t want to be a part of any group like that…It feels like AA!”

Everyone copes in their own way.
https://migraine.com/living-migraine/why-you-should-tell-your-story/?utm_source=weekly&utm_medium=email&utm_campaign=170301&uuid=91184c4408863bacf39ea72bb1c38532

A revealing post from a year ago…

This is as good as it gets.

No more hope. Irrelevant and an obstacle for those near me, a burden they need bare. The world would be a better place without me.

I should be where others are not.

Perhaps it’s just my new chronic self. Perhaps the constant pain ebbing away my joy has turned me snippy, irritable. I’m just not pleasant anymore. I am irrelevant. I am a burden. I serve no purpose in this life.

I don’t say this for sympathy or reassurance. I say it as a matter-of-fact. 

I should be alone. Free the people I love from me.

The weather is stormy and killing my head. Kids are off school. Music lessons. Now at the dermatologist for daughter’s appointment.

Must keep moving despite migraine. Must. Keep. Moving. 

Smile.