Chained… (public)


A passenger who shares my head space.

Room for both of us…but so uncomfortable for me, my life.

As our family drives away from this weekend – of both wonderful and horrible – and back to our safe home… I can feel the inevitable stress letdown triggered migraine. Adrenaline is amazing for my brain pain, but when it wears off…the migraine just blossoms in my brain like a flower. Unfolding, opening, beautiful. My beautiful migraine.

Being heard by an audience of none…

A strong woman will automatically stop trying if she feels unwanted.

She won’t fix it or beg, she’ll just walk away.

Close some doors today. Not because of pride, incapacity or arrogance, but simply because they lead you nowhere. (Paulo Coelho)

Love that she’s smoking ^^^

Yes, I do have a job.

My job is to take care of myself and try to get healthy.

My job is to make sure that I get enough rest, to make sure I take my medicine and to make sure I get to doctor appointments.

And sometimes I can’t even handle that.

Occipital Nerve Block day

Lots of injections today. Thank you Mariah. We sympathized with each other about the recent Austin weather. Talked about the joys of turning to Phenergen when there’s nothing else.

She injected Serapin all over the back of my head, neck, shoulders, temples, head, jaw. The lido makes my head feel like jelly, the skin is numb to touch, but there’s a migraine brewing in there deep in the right side, behind the eye… Deep. 

Nothing unusual.

When she injects the occipital nerves, it’s the weirdest sensation: I can feel the cold solution making its way up my occipital nerve in the back of my head to the top. 

We talked about the election. We talked about family. She suggested in everything, reflect back Love. 

I will strive for that. But I will protect myself too.

Starbucks for being a star patient🌟 Must run today and imitate a Normal.💜

Pneumonia, denied!

Nothing seems to really make the cough go away. I’m prescribed Asthmanex and Dymista, and Ventolin for emergency.

A couple weeks ago, I could tell it was getting infected and my doc prescribed 10 days of Cednifir which really helped.

I have decent days and bad days. Days where I can barely breathe and I’m so robbed of O2, I’ve got to lie down. It’s the grossest sounding cough ever. So productive. I apologize to my family 10x a day for the cough. They promise me it’s ok. I’m so glad it’s not contagious, at least. Insurance (Cigna) still refuses CT scan. I follow up with pulmonologist at the end of the month. I know Cedar season is coming and will be a bleeding nightmare. Gross.