• Coronavirus lockdown for one week
• Unstable weather patterns
• Uncertain times: are we overreacting or under reacting?
• Why is toilet paper selling out?

• Massive migraine action for me… the worst started Thursday and ruined all of today (Saturday) too.
• Thursday every medication was failing and I finally turned to my shots. An expired Sumatriptan injection helped.

• I finished the 11 seasons of MASH on Hulu and had to say goodbye to Hawkeye and Houlihan, goodbye to creative comedy and OR scenes that first stirred my interests to become a nurse.

• Friday was procedure day at APC… back injections into the lumbar area for some sacroiliac relief (its been bothering me like crazy since the DC trip). All the staff was masked and I was thermo checked and screened at the door. Marc wasn’t allowed into the building – only patients.

• Bless their hearts, not all the staff were using protective equipment correctly. The medtech who took me back, had an N95 mask on but kept sticking her fingers between her mask and face by her mouth because “it was hot.” The office worker wore her mask below her nose. Everyone else was fine. Doctor Michaud came to check on me before procedure and he was not wearing a mask. No one tells Dr Michaud what to do!😂😍

• Tried to rest all day… but there was an El Arroyo margarita ZOOM party at 8 with the neighbors. I could only stay about an hour. Then there was more migraining to do.

• This morning my migraining was exploding … out of the back, the sides, the front of my head. Medications, rest, Cefaly. I couldn’t get out of bed. I lay in bed… barely moving… just dying. One of those migraines where I can’t believe how bad it is… one where I don’t bother hiding from my family – because I’m too too sick. Completely ruined day. One where I remember: “Wow, I really DO have migraines – don’t I?” Omg, it hurts so much.

• Finally a dose of butalbitol and phenergan helped. That phenergan… it can really be a blessing when migraine has shut down my gut.
• Sunday I felt some relief. Amazing. Truly amazing. But I was too tired to really get anything done. I folded a load of laundry and cleaned the birdcage. Huzzah.

• Watching the tv series the Dead Zone with Anthony Michael Hall cuz it’s a bit of reminiscence.

• Prepping our world for continued Coronaquarantine remote online learning. The world is indistinguishable; never has this happened before. No word on how long it will be like this. Everyday is a little weirder. The situation is fluid. Very fluid. Unprecedented times.

• Watching the Normals have an apoplexy from quarantine is a little funny… watching the general public misuse medical equipment is amusing as well. There is great loss: both Robyn and Nick have lost their jobs (put on temporary leave). Schools have shit down: the kids will continue UT (Ken) online, TAMU (Corey) online, LTHS (Nick and Robyn) online. No word on prom or graduations.

There is also great kindness and beauty: our community tries to help local businesses with take out restaurant orders and someone need only post an ‘ISO’ post and there are offers to help.
• This will be a time to remember for certain. A time when people will ask “Where were you when…” All because of a funny little bug: the COVID19.

My first migraine, from a Chronic Migraineur

Migraine has always been a part of my life. So when I was asked about my first migraine experience, I had to think a bit. When was my first memory of this neurological “storm?”
And then I stumbled across a vivid one. I must have been six years old, because I was at a YMCA summer morning camp. I didn’t need or usually attend summer camp – my mom was a stay at home mom. So I must have wanted to attend, or even joined with a friend.

I don’t remember all the particulars, but camp ended with all the children meeting in the YMCA gymnasium before it let out at lunch time. In my memory, the room was huge and echoey – in that way school gymnasiums are, hundred of kids on wooden bleachers, singing or shouting and stomping a camp song together. It was loud. I remember sitting with my group and trying to participate in the activity. I could not perform well; I couldn’t sing along, just stare and go inward. The entire episode was intolerable. There were too many people and it was too very loud and I felt sick to my stomach and… there was something quite wrong with my whole head. It vibrated and throbbed as if it’d been struck like a gong. I wasn’t having fun at camp; I wanted out. I was “spaced out” and confused and I wasn’t able to think of what to do….except wait for camp to be over and wait for my mom to pick me up. I wasn’t scared and I tried to keep up with the activity.
When I got in the car, I was quiet. And since the loud echoey noise was left in that gymnasium, it was easier to handle my gong-head and nausea.
I must have looked pale or distant or like something was wrong and I must have been able to verbalize some of what I was experiencing. And my mother really saw me and had no hesitation diagnosing, “You are having a migraine,” she said.
Some people wait years and years for their diagnosis. I was diagnosed in a few minutes.
How did my mom know? Because she was an episodic migraineur. She struggled with hormone and stress triggered migraines one to a few times a month. She described them as 3 day crescendos, with the pain becoming it’s highest level on the last day. Then she described the postdrome as feeling “bruised all over the day after.”

She did not have aura or visual aura. And neither do I. And for many many years, she did not have anything for treatment but aspirin, until the 1980’s when ibuprofen became available. And by the time my mom went into menopause, her migraines nearly ceased to exist. My dad would also occasionally get “weekend migraines” from stress letdown of his job. I’m told even my grandparents had episodic migraines. It’s clear I have a very strong genetic predisposition for migraine.

So on that day… that YMCA camp day with my migraine, my mom took me home, gave me some yummy chewable aspirin and some food and drink, and put me to bed.
And I recovered.

I also remember another migraine when I was older… probably age 10-12. I was in bed in my dark room, miserable with throbbing head pain and light sensitivity, and waiting for the ibuprofen to start working. My dad came in to check on me and he started to massage my head. He was used to doing this for my mom and her migraine attacks. He massaged my head, found where the pain was worst and applied pressure. I remember it as one of the most amazing feelings of my life… like my dad was expelling the migraine from my brain.

For so many years, I was in good control of my migraines. Ibuprofen and rest was my effective treatment. I never doubted it would be a part of my life, but I didn’t have any idea it would be so much more. 

It wasn’t until my mid-thirties, four children, and perimenopause that my episodic 4-12 migraines a year would slip steadily to a chronic diagnosis. I didn’t understand what was happening and it has taken me years to understand my diagnosis. Now I experience migraine or migraine symptoms nearly everyday with at least 18 attacks a month. This wasn’t how I envisioned my life. I was supposed to be healthy, an active wife and mother, working my career as an RN, possibly attending my hobbies in reading, writing, acting, and volunteering. 

Apparently that was not meant to be.  Instead, I work hard on my health, manage my illness, and I’ve become a migraine advocate to educate people about this invisible illness.