Enjoying our lil family vacation in Pensacola post RONA pandemicon…
ChronicMigraine takes no vacations. It is defined as 15 or more migraine episodes a month for at least 3 months.
Migraine has a myriad of neurological symptoms: throbbing, one-sided head pain that worsens with activity, light & sound sensitivity, nausea & vomited, confusion, vertigo and so much more.
I have a strong genetic predisposition for migraine and was an episodic migraineur from age 6-36. I have been Chronic from 36-present 49.
While there is no cure for Chronic Migraine, I will always work with medical professionals and various therapists to decrease my migraine activity. I owe so much to my WONDERFUL, supportive & loving family and friends. I wish I could be the friend, mother and wife they deserve. 💜❤🦋
#MAM2021 #migraineawareness #shadesformigraine #migraineawarenessmonth2021 djk #mybeautifulmigraine
By now, most people in the migraine community have heard of, if not tried, the CGRPs – a new approach in the prevention and treatment of migraine. After a bit of a drought in the development of effective medications for this prevalent condition, many migraineurs were lined up and chomping at the bit to see what all the hubbub was about. And there was quite a lot of buzz about this new treatment. The positive results from the trials were rumored to be significant and potentially life-changing.
A recurring question about CGRPs
It’s now been two years since the three variations of the CGRPs were introduced (Aimovig, Ajovy, and Emgality) and beyond the troubling stumbling block related to its high expense, one major question seems to keep reemerging: “Why does this treatment work so well for some and not others?”
CGRPs don’t work for everyone
Why not me? With hopes raised high by the success stories of others, many of our community members expressed disappointment after trying one of the CGRPs to no avail. Such a normal response to be let down after hearing about the dramatic improvement of others when you don’t achieve a similar outcome.
If at first you don’t succeed, try, try again. However, we have learned that not all CGRPs operate in the same way. So, if one of the three CGRPs is ineffective, it doesn’t necessarily mean that another will not work.
One size does not fit all with migraine
Of course, there’s also the potential outcome that none of the CGRP treatments will work for you. Or that, rather than stopping your attacks dramatically and entirely, this treatment may improve your condition just slightly. Migraine works so differently in all of us so that what is an effective strategy for one person can be completely ineffective for another.
A multipronged approach to migraine treatment
For most migraineurs, there is no such thing as a simple cure or easy fix. Rather, the most effective strategy is a multipronged one, involving multiple approaches which include various medications and countless life alterations (diet, sleep, and exercise) that, coupled together with time, effort, energy, and lots of patience, will result in a gradual improvement in this complex neurological condition that is migraine.
I wish the CGRPs had been the magic cure for me – I trialed Aimovig and Emgality before my insurance made me choose between CGRP or Botox. The CGRP migraine abortive Ubrevly has been quite helpful during attacks – about as reliable as triptans. But none of the preventative monthly injections worked. 😒
This is the most EXHAUSTING and FRUSTRATING part of Chronic Life. It started for me in 2010, I’d get to work and would be sleepwalking from 8 am until at least 12 noon. It was like the flu without fever and respiratory problems – just incredible achiness and complete exhaustion. Baffling, I researched and grilled my medical team. No answers. I’m almost 100% sure it’s related to Rheumatoid Arthritis and post/prodrome.
The most upsetting part is when I finally have a break from migraine, I want to do do do! But my body is made of concrete and I’m trying to move through quicksand.
This is outrageous. Imagine the person who had a lumpectomy, no radiation, or chemo, and was cured telling the woman with metastatic breast cancer in her bones and liver that “breast cancer isn’t so bad.
Thank you #cefaly #cefalyus for being the only #migrainedevice that helps me combat #ChronicMigraine
Drug-free, money back guarantee, now available in US without prescription… once you purchase your Cefaly, it’s yours to use as frequently as you need with no further expense (excluding electrodes) or prescription required.
Cefaly offers an intense counter electrical stimulation that combats #migraine pain and symptoms. It is compact, rechargeable and travel-friendly. While resting is the best during Cefaly cycle for me, you can also do minor tasks… like laundry. Not for use while driving a car. Then again, I cannot drive a car (safely) during a migraine attack either.
#chronicmigraineawareness #migraineart #speakyourmigraine #patientsnotaddicts #migrainedevice
This is so good. 🤣😁👍🏼
Chronic Migraine … is an ocean you can’t swim out of. It is dark, unfamiliar room where you stumble over unknown objects and trip with arms outstretched – you can’t find the walls – and certainly not the door that leads you out. Is there even a door out in this dark room?
Chronic migraine … is the nightmare you cannot wake up from. It’s so long and real, you forget you’re dreaming.
The brief reprieve moments from symptoms are fleeting and often tainted by Chronic Migraine – like watching a beautiful sunrise through a filthy window and from beneath a dark veil over your face.
Chronic Migraine … invites itself in to your body – to your life and moves into the command center. It becomes a part of your whole body, your whole life, your loved one’s lives – dark and sinister – like mold spreading, like disease metastisizing.
Looking in the mirror … there are parts of me I can recognize … I can feel me when I laugh and when I’m having a rare moment of disease reprieve. I’m in this body somewhere … behind the dark under-eye circles, beneath the extra pounds, beneath the crap joints and the dark thoughts, relentless pain, and short temper. I can lay in a bed all day and not feel the least bit rested – just utterly exhausted. That amazes me everytime. I’m sooo bloody TIRED! Someone turn OFF the Tired, PLEASE!
Chronic Migraine … cannot erase me completely … although it seems that is its goal.
I push one bone-weary foot in front of the other. I’m skilled at log-rolling out of bed. I can identify medications with my eyes closed and in the dark by shaking the bottles – that one is a capsule, that one is a tiny pill. Like an athlete trains for their best physical performance, I know how to reserve and conserve my energy – for days – in order to accomplish the most basic life tasks.
I am a Chronic Migraine Jedi. Many years I have trained. The Force is with me and I am one with the Force.
#ChronicMigraine #migraineawareness #InvisibleIllness #Chronicillness #guiltandchronicillness #patientsnotaddicts #speakyourmigraine #spoontheory