Called insurance on my own😭 Spoke with specialty pharmacy twice😭 Went on to spend one hour on conference call with Neuro Botox coordinator and insurance specialty pharmacy… it should be soon. I was weeping for most of the call😭 I appreciate ALL the helpful messages and prayers. I will make it through this… 80% sure. They will fit me in early next week. If there was ever a test to see if #BOTOXforChronicMigraine is important for my #ChronicMigraine treatment, I’ve passed. I don’t want to die. I just want to LIVE😭
I might just die here in this bed. Or run into traffic. It doesn’t feel fair. I don’t want to die. I want to LIVE.😢
My neurologist of 10 years retired in March. I started with a new, very wonderful neurologist right away. I’ve been in treatment with BOTOX for Chronic Migraine for almost 15 years and was due for botox on 5/18… The new neuro has been working with my insurance to approve my treatments, and I’m still waiting. I feel like death every single day. I don’t know how much longer I can wait. Speaking with my insurance and specialty pharmacy just gets me nowhere. Have sent an sos message to my new doctor. Why does this have to be so difficult?
Episodic Migraine is common. Most people have, or have had, or know someone with MIGRAINE. But why do some migraineurs become CHRONIC (15 or more migraines a month for 3 or more months)? Often, this is a consequence of inadequate migraine treatment. It is crucial to manage this neurological event PROACTIVELY & AGGRESSIVELY. It’s important to medicate appropriately at the START of the event. Waiting is not recommended. If your migraines have a new and unusual symptom, following up with your medical provider is critical. Migraine is most frequently a hereditary ailment, often starting in childhood or puberty. But, if you have no hereditary factor, a full workup is in order – you could have an anatomical abnormality.
Truth is humbling and embarrassing. You get it when you *get it.*
I remember in my later 30’s when I felt my normal life slipping away, a Saturday where I suddenly could not complete my weekend to do list – collapsing in bed face first I wailed dramatically to my Marc: “What is happening to me!?”
Let’s talk about NON MEDICATION migraine prevention and treatment. This list can be incredibly helpful. I’ve always believed in a multi approach at treatment – migraine treatment doesn’t always have to be drugs.
You are not alone. You are not a freak. You didn’t cause this. You are not attention-seeking or meds-seeking; you are just trying to survive, be present, and LIVE. Every day, you work to try to get better. I see you and hold you up. Together, we will make a difference 💜❤️💜🌏
May your ice packs stay cold and your abortives anf treatments pack a punch in migraine’s face!👊🏼
Please: make sure to download a migraine tracking app to your phone & use it! This will be essential information to bring to your doc. It helps creates the data that could identify your triggers & identifying migraine TRIGGERS is your most powerful step in migraine treatment.
Migraine is the third most common disorder worldwide, affecting 1 in 7 people. Chronic migraines affect about 1 in 50 people worldwide. Women tend to be affected by migraines more frequently than men.
Now… I’m realizing – for quite a while – I dread it; it makes me anxious. Because I’m so terrified of waking up feeling like crap the next day. It just hurts my soul and destroys my joy.
I look back on my day in which I’ve accomplished nothing – often not even getting out of PJs.
To manage sleep, I must always address the pain I’m in at present: heating pad in the right spot, pillows propping the best ways, and ice in place on my head.
I dread the pain and exhaustion I will wake up with. The uncertainty – will tomorrow be like today – pain, disappointment, dragging my butt around trying to get SOMETHING done – maybe put away some clothes or straightening a room, run an errand to UPS, work my biz … in between flopping around like a dead fish in my bed for essential rest and recovery.
My RA has been flaring – a couple of days ago, I tried to pick up my mug of coffee, and my hand failed… coffee flooded everywhere. And it made me so sad. This was a new and awful experience for me. And I was mentally broken cleaning up the disaster of a “hand fail.” And, of course, since my new Neuro switch, I’m 2 weeks late on my #BotoxforChronicMigraine so – yeah, my migraine has been a bastard.
I work hard on granting myself and my body GRACE as I lie here, trying to fall asleep: my hands and feet ache, my head hurts, and my lower back pain and sciatica are screaming. Every muscle and joint is impaired.
I know oblivion will eventually come. And I’ll sleep. And I’ll dream. But then I’ll open my eyes up in the late morning to another day of chronic illness and pain. And I’m anxious about how hard it will be.
Another joy chronic illness has poisoned. A small prayer: may we all have a good day tomorrow. 🙏🏼
mybeautifulmigraine 