Posted on by MyBeautifulMigraine

The COST of Migraine

I rested several days for yesterday; I was so excited to LIVE. I took a Reyvow Thurs night and woke up OKAY on Fri morning at 8 AM! Drove to my daughter-in-law’s to float the San Marcos with her and her friend. It was absolutely sublime!

After, I made it home to quick shower off turtle river smell and dress for dinner with our good friends Meg & Albert at Ling Wu.

We had drinks and AMAZING cuisine and wonderful togetherness.

When Marc and I arrived home, it was time to start treatment for the migraine that would come.

Today I woke at 9:30. It’s 1 PM now, I’m medicated, have ice on my head, and heat on my sciatica/back. I will not be moving from this bed.

…and it got me thinking about the COST of Chronic Migraine… do people understand the COST?

Posted on by MyBeautifulMigraine

The yearning for proper treatment

I’ve been working on this for 44 days.

Called insurance on my own😭 Spoke with specialty pharmacy twice😭
Went on to spend one hour on conference call with Neuro Botox coordinator and insurance specialty pharmacy… it should be soon. I was weeping for most of the call😭 I appreciate ALL the helpful messages and prayers. I will make it through this… 80% sure. They will fit me in early next week.
If there was ever a test to see if #BOTOXforChronicMigraine is important for my #ChronicMigraine treatment, I’ve passed.
I don’t want to die. I just want to LIVE😭

Posted on by MyBeautifulMigraine

When your #BOTOXforChronicMigraine is so late, you’re dying

I might just die here in this bed. Or run into traffic. It doesn’t feel fair. I don’t want to die. I want to LIVE.😢

My neurologist of 10 years
retired in March. I started
with a new, very wonderful
neurologist right away.
I’ve been in treatment with
BOTOX for Chronic Migraine
for almost 15 years and was
due for botox on 5/18…
The new neuro has been working
with my insurance to approve my
treatments, and I’m still waiting.
I feel like death every single day. I don’t know how much longer
I can wait. Speaking with my insurance and specialty pharmacy
just gets me nowhere. Have sent an sos message to my new
doctor. Why does this have to be so difficult?

#ChronicMigraine #InvisibleIllness #BOTOXforChronicMigraine
#MigraineAwarenessMonth

Posted on by MyBeautifulMigraine

Migraine Awareness Month 2023

Episodic Migraine is common. Most people have, or have had, or know someone with MIGRAINE.
But why do some migraineurs become
CHRONIC (15 or more migraines a month
for 3 or more months)? Often, this is a
consequence of inadequate migraine treatment. It is crucial to manage this
neurological event PROACTIVELY & AGGRESSIVELY. It’s important to medicate appropriately at the START
of the event. Waiting is not recommended. If your migraines have a new and unusual symptom, following up with your medical provider is critical.
Migraine is most frequently a hereditary ailment, often starting in childhood or puberty. But, if you have no hereditary factor, a full workup is in order – you could have an anatomical abnormality.

Posted on by MyBeautifulMigraine

Chronic Illness Truth

Truth is humbling and embarrassing. You get it when you *get it.*

I remember in my later 30’s when I felt my normal life slipping away, a Saturday where I suddenly could not complete my weekend to do list – collapsing in bed face first I wailed dramatically to my Marc: “What is happening to me!?”


#ChronicMigraine #ChronicIllness #InvisibleIllness #CMAware #ChronicMigraineAwareness #RA #ChronicPain

Posted on by MyBeautifulMigraine

Migraine Treatment Non Medication

Let’s talk about NON MEDICATION migraine prevention and treatment. This list can be incredibly helpful. I’ve always believed in a multi approach at treatment – migraine treatment doesn’t always have to be drugs.

*MAGNESIUM 500 mg at bedtime
*BUTTERBUR & FEVERFEW herbs
*RIBOFLAVIN/B complexes
*MELATONIN
*COQ10
*GINKGOLIDE B
*DIAMINE OXIDASE (DAO) supplement
*CANNABUS or CBD
*essential oils: PEPPERMINT, ROSEMARY, LAVENDER, CHAMOMILE
*GINGER
*ACUPUNCTURE
*MASSAGE
*BIOFEEDBACK, STRESS MANAGEMENT & RELAXATION TECHNIQUES
*YOGA
*PHYSICAL THERAPY
*SLEEP, DIET & HYDRATION
*ICE or HEAT
*NIGHTGAURDS
*MIGRAINE GLASSES (Avulux, Theraspecs)
*MIGRAINE DEVICES (Cefaly, Relivion, Nurivio, gammaCore, Spring TMS or eNeura sTM)
@cefaly_official @relivionmg
#MigraineAwareness #ChronicMigraineAwareness #ChronicMigraine #champ #MigraineAwarenessMonth

Posted on by MyBeautifulMigraine

I have CHRONIC MIGRAINE

You are not alone. You are not a freak. You didn’t cause this. You are not attention-seeking or meds-seeking; you are just trying to survive, be present, and LIVE. Every day, you work to try to get better. I see you and hold you up. Together, we will make a difference 💜❤️💜🌏


May your ice packs stay cold and your abortives anf treatments pack a punch in migraine’s face!👊🏼

#ChronicMigraine #ChronicMigraineAwareness #CHAMP #MigraineAwarenessMonth

Posted on by MyBeautifulMigraine

Got #MIGRAINE?

Please: make sure to download a migraine tracking app to your phone & use it! This will be essential
information to bring to your doc. It helps creates the data that could identify your triggers & identifying migraine TRIGGERS
is your most powerful step in migraine treatment.

Data! Data! I cannot make bricks without clay

Sherlock Holmes



#ChronicMigraine #ChronicMigraineAwareness #CHAMP #MigraineAwarenessmonth #mybeautifulmigraine

Posted on by MyBeautifulMigraine

Is CHRONIC MIGRAINE a rare disease?

Migraine is the third most common disorder worldwide, affecting 1 in 7 people. Chronic migraines affect about 1 in 50 people worldwide. Women tend to be affected by migraines more frequently than men.

#ChronicMigraine #ChronicMigraineAwareness #CMA #champ #mybeautifulmigraine #MigraineAwarenessmonth