Posted on by MyBeautifulMigraine

My last Neuro appt; a realization!

At my last botox appointment, my Neuro asked me about my chronic migraine status. Sometimes keeping track of Chronic Migraine can be so completely depressing, so I admit I’ve slacked off on my tracker phone apps. But I thought a bit about my recent experiences before answering the question… I realized that while I have migraine symptoms every single day (🙄 of course… photophobia, lethargy, pain, phonophobia, brain fog, and so much more), I really only have about 2 migraine episodes a week that last approximately ~24 hours with treatment. This is an exceptional improvement, for sure. And I truly am grateful 🙌🏼


This solid progress is is a result of my Chronic Migraine regimen right now: •Botox every 12 weeks, •Nurtec (as a preventive) every other morning, •Nadolol 10mg and Tizanidine 4mg every night. For abortive treatment, I still have a plethora to cycle: Reyvow, Maxalt, Ubrelvy, Butalbitol, Sumatriptan injection, Phenergen, Indomethacin.

However, some very SAD news in my migraine world: Reyvow is being pulled because it isn’t making enough money for the company. I’m so unhappy: I really, really like Reyvow for those particularly bad or nighttime migraines… so I’m trying to fill my script as much as possible before the medication sunsets forever.

Discontinuation of Reyvow® (lasmiditan) for Acute Migraine Treatment: What To Do Next – Association of Migraine Disorders https://share.google/RrDGctNMDlPP7hmX0


While I was thrilled to acknowledge this solid Migraine win, my buddies Rheumatoid Arthritis and Sacroiliac Joint Dysfunction still are a huge part of my Chronic Illness daily life. And they never let me forget it!


Love you all… Warriors: keep up the fight!💪🏼💜

My grandbaby time; I LIVE for it! Daisy is almost 3 months, Theo is almost 2.5 yrs. 🩵🩷 GiGi life is the absolute BEST!💖

Still overwhelmed trying to work my biz… but it’s amazing for feeding my soul to serve women, flexibility and honoring friendships.

https://cabi.cabionline.com/TheDivaDonna

Cefaly FTW! – use at least 1-3x a month.
Me at cabi Spring 26 Fashion Week in between sessions… This is how – spend most of my life😂 REST is ESSENTIAL; it isn’t the same as lazy.
MY sweetest and most reliable supporter, Mr Kobo. He is everything ❤️
I haven’t been able to exercise in ages, but I’m actually BIKING now! Our kids got us ebikes for Christmas and we LOVE it!!!🚲

Of course as I type this, I’m quite sick with a head cold. 🫩 It’s not the flu, it’s not very serious, but having “just a cold” while battling Chronic Illness and a compromised immune system is the ultimate injustice! I’ve been incapacitated the last 5 days and hope tomorrow is a better day!😊

Posted on by MyBeautifulMigraine

Shingles. Again. Stop. Listen.

My third outbreak. And post 2 shingles vaccines. Shingles and I are in a situationship. It is a fact.

Pushing to start myself this morning … it’s already almost noon. But I have things to do, people I’ve promised … things I need to do for myself and others. I can not stop. I will not stop.
But the shingles are here … the blisters on my left posterior iliac have faded, but the postherpetic neuralgia is flaring like a white hot fire.

I’m in extraordinary pain. As well as “regular” pain – in my brain and in my joints, and my back and sciatica.


My Lord, my Lord … I hear you. The shingles have always been a message from you … guiding me, talking to me – yelling at me. You have always been with me, holding me on my feet.

As I listen to you, the tears well up in my eyes … I am listening, and I know I am doing too much … but I feel like an extraordinary failure. I have failed. I continue to fail. My body does not work like other bodies my age. It doesn’t work like it used to work just a few years ago. Around me … I’m constantly surrounded and reminded of all the small things that are huge things that I MUST do. I need to DO. And I don’t do them. Drowning. Trying to prioritize.


Dear God,
Quiet my heart so I can hear You.
In the noise and rush of my thoughts,
help me pause and listen for Your gentle voice.

Teach me to recognize Your whisper in the stillness and through the people You send my way.
When I am uncertain, guide me with peace that settles deep within.

Give me ears that are open,
a heart that is humble,
and a spirit ready to follow wherever You lead.
Speak, Lord—I am listening.

Amen.