If you don’t have chronic pain, imagine the worst pain you ever felt. Maybe a broken bone, or stomach bug you caught on vacation once. Now imagine that pain is with you every day. It never fully goes away. Imagine how difficult it would be to work, see your friends, go grocery shopping, and spend time with your kids. Imagine the strength it would take to get through each day. That’s what people with chronic pain deal with every day, sometimes for years. So no, this isn’t a matter of patients needing to “toughen up.” They’re already tough.
Lastly, get over whatever issues I have about not wanting to ask for help. If one of my loved ones were in the same situation I would want to do whatever I could to help out.
This. Wowza, as if I wrote it myself.
Migraine is most common and most disabling during young adulthood and through middle age, the time in our lives when we have the most responsibilities and greatest challenges in achieving education, building careers and establishing families.
Month 2 of CGRP Emgality Migraine Prevention Injection.
I will be able to give Emgality 3 months total trial before I’ll make an evaluation on its effectiveness. At that time, my insurance will go buggy and require I decide between the CGRP or Botox. Which is unthinkable. I wonder… do they make a cancer patient decide between radiation and chemo?🤔
The first month of Emgality has been less than impressive. No change at all in my migraine status, but no side effects either.
1) Medications are not good or bad; they are tools.
2) Dependance and addiction are not the same thing. And not all people are addicts or even potential addicts.
3) Human beings are suffering, not being saved by legislation that interferes in the private relationship between doctor and patient.
Yes, this is an acupressure point and I’ve known about it for 2 decades. Yes, I’ve even tried it by holding pressure there, as well as having acupuncture needles. Maybe it works for some, but it’s rubbish for me.
If only a bag clippy could heal me. The amount of money, time, life that has been taken from me …a bag clippy will not fix.
Photophobia is a constant with me since becoming Chronic in 2007ish. It doesn’t matter if I’m migraining or not… it’s always there. It feels like a dull pain or irritation in my eyes or a terrible stinging. Most sunglasses are ok for outside (and I have them stashed EVERYWHERE – like lip balm). For inside and hazy days, I have indoor Axon Optics which are special migraine sunglasses with a rosy tint. At night, I need HD yellow tinted glasses for driving as the oncoming headlights and any night lighting is too intense. Most indoor lights are ok for me bare-faced. 😎 I haven’t opened my bedroom blinds in 4 years. Very sad. Thankfully my dear husband is fine with that. ❤
How often is the person with mild migraine dismissive of the one who has it much worse? How often has someone with severe, life altering migraine, heard a version of: “I don’t understand, when I have migraine and I take 2 excedrin and an espresso, and I’m fine?” This is outrageous. Imagine the person who had a lumpectomy, no radiation, or chemo, and was cured telling the woman with metastatic breast cancer in her bones and liver that “breast cancer isn’t so bad.”
But to the ones who know them very well — they know! An observant husband might tell a wife: “you’re a six (out of ten) aren’t you?” And they are probably right. Sometimes the loved one will know there is a headache, even before the patient has registered it for themselves. But for the rest of the world, it is hard to empathize with a thing they can’t see.