Chronic Migraine:
Take a normal life, marinade in incredible pain, turn it inside out, flatten
with mallet, chop into pieces, then freeze.
Garnish with guilt, shame, depression, feelings of uselessness & anxiety.
Serve with generous amount of horrible neurological symptoms, social
stigma & misinformation.
Enjoy!
#ChronicMigraine #MigraineAwareness #SpeakYourMigraine
It’s the car crash you never saw coming. The train derailment. The robbery.
And your heart breaks over and over again as you try the new thing that may be the IT that restores your life. The life you were living… where you were human, contributed to civilization, society, and your family. Can you even remember what that life felt like? Remember, you could speak in full sentences and take a shower without having to rest…
Your friends and armor: Faith and Hope… are they still at your side? Today is a cacophony of tears. It’s too many days stuck in bed. Pain flaring, exhaustion overwhelming. I don’t have the energy to shower or wash my hair. Our weather sucks (rain) and allergies are soaring… I am an abundance of uselessness.
#ChronicMigraine #MigraineAwareness #SpeakYourMigraine
djk #MyBeautifulMigraine
I wish I could still write like this. This article is PERFECT, concise, and accurate. Thank you!
https://migraine.com/living-migraine/9-things-people-with-want/
100% I realize people mean no harm at all… it is in fact, very thoughtful to bring up migraine in conversation.
💜❤💜
“I wish I could stay at home every day like you” I’m trapped here and every single day I grieve the life I used to have.
“Yesterday I had a headache too” I am SO sorry as I don’t think ANYone should ever have to endure head pain, but migraines and headache aren’t the same thing. When you compare them, it actually feels like you’re dismissing the neurologic disorder.
“You look fine to me, it can’t be that bad” I don’t want to look sick… if I walked around looking how I feel, I would look like a decaying zombie dragging myself on the ground.
“Migraine? How’d you get that again?” This one I like… because it’s a genuine question and it shows interest. Answer: I got migraine from doing an inverted yoga pose for 2 weeks.😂 TRUE simple answer: genetics.
#ChronicMigraine #MigraineAwareness
… someone said about me recently. “And she has a lot of piercings.”
There are FOUR (4) magical days a year; BOTOX for Chronic Migraine days 🎁💉
☆40+ injections forehead, occipital, neck, shoulder, temples, jaw every 12 weeks x 7+ years (botox therapy helps decrease migraine intensity and length, makes migraines more responsive to abortives)
☆Personal statistics: average of 18 migraine events per month that last average of 1-3 days each. 0-1 days per month without migraine symptoms
☆”That will be $2179.02 today.”💸 Here ya go!💸😵
☆”She has a rather lot of piercings”🧐 Why yes, yes she does🤔 # years CHRONIC
ChronicMigraine #MigraineAwareness #BotoxforChronicMigraine
It feels like an overbearing parents or controlling partner that I constantly have to check in with and see if I am allowed to do something.
https://themighty.com/2018/11/description-of-what-chronic-pain-feels-like/
Chenoweth says migraine and Meniere’s disease almost ended her career. Now she advocates for others with these conditions.
https://www.brainandlife.org/articles/kristin-chenoweth-says-migraine-and-menieres-disease-almost-ended-her/?fbclid=IwAR3_fDVYQncYgi06Uvvkt7r9obj_76Fa3vZEyNRWI4S3ZAIy1T_ipSZNhN4
https://migraine.com/news/ubrelvy-approved-fda-cgrp/
Update 1/23/2020: Spoke with my neuro about Ubrelvy and the idea of me trying this new drug. She did not recommend it for me since triptans work relatively well. Apparently the data on Ubrelvy is not that exciting… in placebo trials, it works only marginally better than placebo. And it has not been studied in trials compared to the effectiveness of triptans.
It sounds like Ubrelvy might be a great option for those unable to take triptans. And, perhaps an option to add to one’s arsenal against migraine attacks (including triptans, when a triptan fails). I know I’ll be keeping an eye out for personal results as other migraineur friends try this!
Christmas Eve.
One of my most favorite days of the year.
The story of a tiny baby’s birth. A tiny baby that would change the whole world.
We’ve always made the day about family. And I so look forward to attending candlelight church service when we can hear and praise the story of Jesus’ birth – that wonderful, amazing and oh-so-well-known story.
For unto us a child is born,
unto us a son is given:
And the government shall be upon His shoulder:
And His name shall be called
Wonderful, Counselor, the mighty God, the everlasting father,
The prince of PEACE.
When the kids were little, we would drive around the neighborhood looking at Christmas lights after church and I’d read them The Night Before Christmas. As they’ve grown up, our Christmas Eve has grown up, but still the holiday remains so very special.
There is a peace I feel when we sing Silent Night by candlelight as a congregation…
It speaks to my soul.
As my migraines became chronic, church was something that started to slip away for me. God has always been a very important part of my life and my husband and I have always found great comfort in a church family. We were regular attendees, first in our Presbyterian church and then in our Methodist church in Arizona. Our children were all baptized and we strived to raise them with a christian foundation of love.
But Chronic Migraine happened. And I found committing to even just one hour each Sunday overwhelming. I couldn’t do it. We continue to be very spiritual people, just not very successful with religion. 😦
And so… Christmas Eve has become that ONE day, that most important ONE day for me to make it to congregation. No matter what.
This year my parents are not visiting for the holidays as Ken & Courtney’s wedding is Jan 4 and everyone is coming for that! So it’s just our small family. Nick is working, Courtney works tonight.
I woke with a mild migraine and a master plan of 2 pm Christmas Eve service at Lake Hills Church. I took my medicine and stayed in bed… waiting for my triptan to work.
It didn’t. Some migraines just do not respond to the triptan. And remember, I only get 9 triptans a month… so, when they fail, it’s as if I’ve just thrown one whole important dose in the toilet. Gone. And a FAIL. Damn, it’s upsetting.
The migraine continued to worsen. And my Cefaly failed as well. On to different meds. And a shower. I’ve GOT to get ready.
We were running on Migraine Time, which isn’t very convenient and reminds one of a frustration dream where you’re trying desperately to get somewhere and you keep finding yourself battling obstacles.
We made it to church. Just a bit later than we wanted. And it was a lovely service as always. And we sang Christmas carols and Christmas hymns. And I had to leave in the middle to take yet ANOTHER pill for my head. It was exploding. And I was smiling. And singing. And enjoying the community of congregation at Christmastime. My heart is full, and my cares are fleeting, and my family is near, and I am complete of Grace and Love. And it’s the ONE day I’m at church. And my head is exploding.
When we got home, we had appetizers and Robyn suggested Star Wars (since we have tickets as a fam to see Star Wars tomorrow – Christmas Day.
I’m close by (in the dark bedroom) with my beautiful migraine. If I have to migraine, there’s no one else I’d rather be with. These amazing people always gift me unconditionally love, support and care. Christmas gifts beyond any treasure.
My most favorite day of the year… the story of the birth of a tiny baby and a woman who became a Mother.
Chronic Migraine takes no holidays. No lunch breaks, no vacations, no weekends. I can rely on it more than anything in my life.
Merry Christmas, Christmas People!
#ChronicMigraine #MigraineAwareness #speakyourmigraine #PainAwareness #ChronicIllness #invisibleillness #MigraineTakesNoVacation #PatientsNotAddicts
mybeautifulmigraine 