mybeautifulmigraine

Saturday.

Families and people are out living. Going to events, enjoying the weather, living life.

And I’m here. Ball and chain of Pain around my head. Tethered to my home and bed. A burden on my family.

I get up and putter around the house after resting: cleaning out a closet, changing a washload, putting things away that have been lying out for weeks. Every action feels like a marathon. (And there are people running marathons today!).

Tomorrow is a big day. We’ll have people over…Ken’s collegiate Overwatch tourney. I’ll need to be better for that. And I’ll need my house clean for it too.

Liberal whining by Hollywood celebrities reveals anti-woman bias – Washington Times

http://m.washingtontimes.com/news/2017/feb/15/liberal-whining-by-hollywood-celebrities-reveals-a/

My head. My back. It’s all screaming. Stop screaming. I need to live.

https://migraineurmutteringsandmusings.com/2017/02/12/the-facade-effect/

Love this. 

The idea of clutching and clawing at my eyes when I step outside – to represent the severe photophobia. Lol. My friends and family would laugh and laugh. Lol.

​Lab tech and I were talking today. When I told her I have Chronic Migraine, she sad sadly, “I lost a friend to Chronic Migraine…Doctors wouldn’t believe her and the pain was too much. She took her life at age 17.”

We are not seeking meds, we are seeking relief and a cure.

#ChronicMigraine KILLS

#MyBeautifulMigraine

#chronicthuglife 

#patientsnotaddicts

Recently, I was accused of being “privileged” becuz of the color of my skin. I don’t feel all that provledged. I can’t clean my house, volunteer at my kids’ schools, work as an RN or take my dogs for a walk on a sunny day.

Is this privledged? 

I am grateful. Grateful for my health – it could be much worse. Grateful for my wonderful husband, my rock and my beautiful, creative and inspiring children. I am grateful my husband works so hard to support us – that we can live in a comfortable home. We don’t get everything we want, but we do get everything we need. And we have each other, which makes us blessed beyond words.