Posted on by MyBeautifulMigraine

The yearning for proper treatment

I’ve been working on this for 44 days.

Called insurance on my own😭 Spoke with specialty pharmacy twice😭
Went on to spend one hour on conference call with Neuro Botox coordinator and insurance specialty pharmacy… it should be soon. I was weeping for most of the call😭 I appreciate ALL the helpful messages and prayers. I will make it through this… 80% sure. They will fit me in early next week.
If there was ever a test to see if #BOTOXforChronicMigraine is important for my #ChronicMigraine treatment, I’ve passed.
I don’t want to die. I just want to LIVE😭

Posted on by MyBeautifulMigraine

When your #BOTOXforChronicMigraine is so late, you’re dying

I might just die here in this bed. Or run into traffic. It doesn’t feel fair. I don’t want to die. I want to LIVE.😢

My neurologist of 10 years
retired in March. I started
with a new, very wonderful
neurologist right away.
I’ve been in treatment with
BOTOX for Chronic Migraine
for almost 15 years and was
due for botox on 5/18…
The new neuro has been working
with my insurance to approve my
treatments, and I’m still waiting.
I feel like death every single day. I don’t know how much longer
I can wait. Speaking with my insurance and specialty pharmacy
just gets me nowhere. Have sent an sos message to my new
doctor. Why does this have to be so difficult?

#ChronicMigraine #InvisibleIllness #BOTOXforChronicMigraine
#MigraineAwarenessMonth

Posted on by MyBeautifulMigraine

Botox Day is HERE!

Botox Day is HERE! 🎄🎁💉
It’s here! It’s here! One of the 4 most happiest days of the year! Migraines have been an incredible battle the past several weeks R/T weather patterns. And we are supposed to get a nasty storm today… Next #BotoxforChronicMigraine
is June!💉
The day of Botox is a sacred day. It isn’t particularly “painful,” but my body and soul feel “violated” by the 40+ tiny subcutaneous injections. So there is an exhaustion accompanied with the procedure… as well as a migraine triggered.
When I first started botox over a decade ago, I had no problem going to work right after, or grocery shopping, or whatever. As I get further into my #ChronicMigraine and #ChronicIllness adventure, I seem to need the remainder of botox day for rest, recovery & low activity. It’s important to keep your head elevated and not to rub injection sites for several hours post procedure.👍🏼 The medication starts to work appropriately 5-10 days post injections.💉
My neuro and I plan to add oral Nurtec as a migraine prevention as soon as my insurance submits… this will be a long process of prior authorizations and one-on-one’s between my provider and insurance. Huzzah! Thankfully my neuro is dedicated. 💜❤💜
And I have duck boots now. My mom never got them for me when they were popular when I was a teen. So I’m hitting them up this time in the wonderful cyclical fashion wheel👢 #WaitingRoomShoePic