Botox Day is HERE!

Botox Day is HERE! 🎄🎁💉
It’s here! It’s here! One of the 4 most happiest days of the year! Migraines have been an incredible battle the past several weeks R/T weather patterns. And we are supposed to get a nasty storm today… Next #BotoxforChronicMigraine
is June!💉
The day of Botox is a sacred day. It isn’t particularly “painful,” but my body and soul feel “violated” by the 40+ tiny subcutaneous injections. So there is an exhaustion accompanied with the procedure… as well as a migraine triggered.
When I first started botox over a decade ago, I had no problem going to work right after, or grocery shopping, or whatever. As I get further into my #ChronicMigraine and #ChronicIllness adventure, I seem to need the remainder of botox day for rest, recovery & low activity. It’s important to keep your head elevated and not to rub injection sites for several hours post procedure.👍🏼 The medication starts to work appropriately 5-10 days post injections.💉
My neuro and I plan to add oral Nurtec as a migraine prevention as soon as my insurance submits… this will be a long process of prior authorizations and one-on-one’s between my provider and insurance. Huzzah! Thankfully my neuro is dedicated. 💜❤💜
And I have duck boots now. My mom never got them for me when they were popular when I was a teen. So I’m hitting them up this time in the wonderful cyclical fashion wheel👢 #WaitingRoomShoePic

Not just head pain

People think of Migraine as “a bad headache.” It’s hard to explain the entire systemic experience. Probably because once chronic, your body in a constant state of “fight or flight,” or prodrome/postdrome cycles.

*Exhaustion *Lethargy *Generalized body pain *Sweating *Impaired thermoregulation *Nausea *Altered appetite *Depression *Anxiety *Throbbing head pain *mild to moderate heat pain

Every day. Every. Day. It’s so boring.

#ChronicMigraine #MigraineAwareness #Migraine #CMA #ChronicMigraineAwareness

Don’t get Chronic Migraine

Oh myyyyyy

Don’t get #ChronicMigraine.

It’s so dumb and wastes a ridiculous amount of time and energy. The shadow that slips into your life with intent to take over everything.

If #Migraine is something you experience, take it seriously… get proactive! Track it, find your triggers, communicate with your health care provider. It’s not all about pharmacology – there are simple life changes, vitamins, minerals and herbs that can make a serious difference.

However, when Migraine episode strikes, don’t “chase it” or “push through.” SLAM IT with appropriate medication and treatment. Improper and inadequate migraine treatment is the root of Chronic Migraine.

#MigraineAwareness djk #MyBeautifulMigraine #SpeakYourMigraine #PatientsNotAddicts #InvisibleIllness #Chronicillness

The Side Effect of Chronic Illness We Don’t Talk About Enough

Embracing the boredom that living with chronic fatigue syndrome can bring has brought some unexpected joys into my life. I still get annoyed at times, but I remind myself of the benefits boredom can bring to both my body and mind. It’s time we started talking about boredom in the chronic illness community and seeing it for what it is — frustrating and wonderful.

The Side Effect of Chronic Illness We Don’t Talk About Enough

Shades for Migraine 2021

Enjoying our lil family vacation in Pensacola post RONA pandemicon…

My Happy Place Vitamin SEA

ChronicMigraine takes no vacations. It is defined as 15 or more migraine episodes a month for at least 3 months.

Migraine has a myriad of neurological symptoms: throbbing, one-sided head pain that worsens with activity, light & sound sensitivity, nausea & vomited, confusion, vertigo and so much more.
I have a strong genetic predisposition for migraine and was an episodic migraineur from age 6-36. I have been Chronic from 36-present 49.
While there is no cure for Chronic Migraine, I will always work with medical professionals and various therapists to decrease my migraine activity. I owe so much to my WONDERFUL, supportive & loving family and friends. I wish I could be the friend, mother and wife they deserve. 💜❤🦋

#MAM2021 #migraineawareness #shadesformigraine #migraineawarenessmonth2021 djk #mybeautifulmigraine

Why Some CGRPs Work When Others Don’t |

By now, most people in the migraine community have heard of, if not tried, the CGRPs – a new approach in the prevention and treatment of migraine. After a bit of a drought in the development of effective medications for this prevalent condition, many migraineurs were lined up and chomping at the bit to see what all the hubbub was about. And there was quite a lot of buzz about this new treatment. The positive results from the trials were rumored to be significant and potentially life-changing.

A recurring question about CGRPs

It’s now been two years since the three variations of the CGRPs were introduced (Aimovig, Ajovy, and Emgality) and beyond the troubling stumbling block related to its high expense, one major question seems to keep reemerging: “Why does this treatment work so well for some and not others?”

CGRPs don’t work for everyone

Why not me? With hopes raised high by the success stories of others, many of our community members expressed disappointment after trying one of the CGRPs to no avail. Such a normal response to be let down after hearing about the dramatic improvement of others when you don’t achieve a similar outcome.

If at first you don’t succeed, try, try again. However, we have learned that not all CGRPs operate in the same way. So, if one of the three CGRPs is ineffective, it doesn’t necessarily mean that another will not work.

One size does not fit all with migraine

Of course, there’s also the potential outcome that none of the CGRP treatments will work for you. Or that, rather than stopping your attacks dramatically and entirely, this treatment may improve your condition just slightly. Migraine works so differently in all of us so that what is an effective strategy for one person can be completely ineffective for another.

A multipronged approach to migraine treatment

For most migraineurs, there is no such thing as a simple cure or easy fix. Rather, the most effective strategy is a multipronged one, involving multiple approaches which include various medications and countless life alterations (diet, sleep, and exercise) that, coupled together with time, effort, energy, and lots of patience, will result in a gradual improvement in this complex neurological condition that is migraine.

I wish the CGRPs had been the magic cure for me – I trialed Aimovig and Emgality before my insurance made me choose between CGRP or Botox. The CGRP migraine abortive Ubrevly has been quite helpful during attacks – about as reliable as triptans. But none of the preventative monthly injections worked. 😒

Sometimes I Just Don’t Feel Well, and I Don’t Know Why |

This is the most EXHAUSTING and FRUSTRATING part of Chronic Life. It started for me in 2010, I’d get to work and would be sleepwalking from 8 am until at least 12 noon. It was like the flu without fever and respiratory problems – just incredible achiness and complete exhaustion. Baffling, I researched and grilled my medical team. No answers. I’m almost 100% sure it’s related to Rheumatoid Arthritis and post/prodrome.

The most upsetting part is when I finally have a break from migraine, I want to do do do! But my body is made of concrete and I’m trying to move through quicksand.