There’s this “edge.” Yesterday the edge happened at 6:30pm. 6:30pm. Unbelievable. What do you do with 6:30pm? Get out of bed and shower and get ready for the day?🌞 No, cuz it’s only “the edge”…migraine is still there.
And – good morning – it’s still here today.
Chronic Migraine and I fit in the same body. And we don’t share well.
#ChronicMigraine #ChronicIllness #invisibleillness djk #MyBeautifulMigraine #speakyourmigraine
Big day for #MyBeautifulMigraine
Botox magic juice injected ($1438.33), and ready to start (and invest my heart) into #CGRP attempt #2 #Emgality
#ChronicMigraine #WaitingRoomShoePic
Praying this one helps.
Praying insurance covers.
Praying I don’t react with intolerable side effects. Anxious with tentative hope.
“Hope” is the thing with feathers –
That perches in the soul –
And sings the tune without the words –
And never stops – at all
Migraine day…all the way…weather and allergens are going their thing…
Did my Emgality loading dose tonight. Easy-to-use pen syringes… but HOLY MONKEYS the shots HURT compared to Aimovig!😭 I’m ready for migraine to stop cold turkey tomorrow once Emgality takes effect!👍
OWIE!!!😭😭😭
The Faux Opiate Crisis
Congratulations Faux Opiate Epidemic, for driving human beings afflicted with Chronic Pain to suicide over facing a hopeless life of endless agony.
Addiction is not Chronic Pain. And dependance is not the same thing as addiction. I’m happy to explain to anyone with questions. It’s hard enough struggling with pain, add to it social shaming and widespread, media-driven ignorance. 😕 This War on Opiates (now extending to other med classes having nothing to do with opiates) does NOTHING to address and help those souls afflicted with Addiction which is a horrible disease worthy of treatment and care.
And lastly, legislating what doctors can and cannot do is obscene. The government has NO place in my relationship with my medical experts. Get out, government! Do the jobs you should: strengthen our military, care for our vets, keep us safe from terror attacks, aid our people caught in the wake of natural disasters! And for the love of everything holy, STAY OUT OF MY RELATIONSHIP WITH MY DOCTOR; it’s none of your biz!
This topic does not affect all people …but someday, it just might. As the list of regulations grow and expand to other drug classes …or your family members are sent home from surgery with inappropriate and improper paintreatment, suddenly this will become a priority for people who never thought it would. Will it be too late to reverse at that time?
#patientsnotaddicts #ChronicIllness #invisibleillness
I’m looking a bit odd recently…may or may not be noticable. Botox for #ChronicMigraine appt is 2/11 @ 11:30 hours. Yes, I’m counting down the hours. *Christmas* is coming🎁💉…34 head/jaw/neck needle injections, the goose is getting fat. Lord of mercy, hear my prayer.💀
#MigraineAwareness
#ChronicIllness
#invisibleillness
#speakyourmigraine
https://migraine.com/living-migraine/debating-abortive-medications/
The Chronic Migraine Reality
Day 3. Meds are failing. I’ve even resorted to my emergency meds.
Sometimes I get this bright idea to describe what I’m going through… like maybe people will find it interesting. And then I think: 🤔 Who really cares?
This episode began Friday and I posted it on social media:
I was able to take most of the day, pull it together and show up for my kids’ production that night
I can’t really scan or search the theater when I’m migraining (or ever)… it’s too big, too bright, too many people. But thankfully, some friends approached me and I could connect with them. 😊
One mama had seen my post from earlier: “How are you doing?” she asked, hugging me. “I’m better… for now. Thank you so much for asking.” “I think about you all the time, you’re so strong,” Shannon said. This leaves me breathless a moment, stunned by kindness and I can feel the tears prick at my eyes. “I don’t feel very strong. But thank you. It all feels like a time and life suck… and so utterly ridiculous.”
The next day was the worst. There was no way I was attending the show. My migraine was an 8. The meds that weren’t failing were only bringing me to a 7. I stayed close to bed… puttering throughout the day… a little here and there. I showered and dressed.💪 But I could not go anywhere. As I fell asleep last night, I felt hopeful the migraine episode would break overnight.
Well… not so. I woke at 8 with a knife in my left brain, stumbled to the freezer for ice, threw back a maxalt and went back to sleep. At 11 I woke again. The maxalt had failed; migraine still there. It’s at about a 6-7 today. My body is burning up, a fine blade still lodged in my left brain. I have aphasia, confusion, lethargy, I’m incredibly short tempered and nauseous. My life is lying in this bed. It’s confounding. It’s ridiculous.
Tomorrow it will break. I’m sure of it.🌞
mybeautifulmigraine 