mybeautifulmigraine

https://migraine.com/living-migraine/counting-pills/

https://migraine.com/living-migraine/9-things-people-with-want/

Imagine a job that you could never leave, not even for a short vacation. A job that is on your mind every moment of every day. A job that wakes you up in the middle of the night demanding attention. A job that causes severe physical and mental anguish, wreaking havoc on your body and your life. Now imagine having to do another job on top of that, like raising children or holding down a paying job. And add another job on top of that, one that requires hours of doctor’s appointments and treatments, pharmacy trips, fighting with health insurance companies, and research each week. The physical symptoms are enough to cause exhaustion, add all the other responsibilities on top of it and we’re pretty well wrecked.

https://refuge.church/2018/12/07/the-major-thing/

https://migraine.com/living-migraine/honest-look-long-term-effects-chronic-migraine-caregivers-perspective/

https://themighty.com/2018/11/opioid-fentanyl-deaths-increase-cdc-data/

“Do you still get migraines?”

I am reaching, but I fall

And the stars are black and cold

As I stare into the void

Of a world that cannot hold…

There is no anchor. There is no foothold. There is only Pain.

A tip:

If the “cure” or “advice” is in the form of a cute graphic with picture, it’s almost certainly bull shit and offensive. But people care; they think about you and they want to help …are desperate to help and fix. And that is a blessing.

https://migraine.com/living-migraine/cgrp-work-key-lock/

It’s supposed to be the other way around.

When a medication doesn’t work for me…it’s the medication that fails me.

So why do I feel like the failure?

It was supposed to work… the studies showed… the data showed… it is supposed to work, preventing migraine.

Topamax, Zanisimide, Cymbalta, Effexor, Prozac, Nadolol, Verapamil, Candasartan, Pristiq, Vibryd, Protriptyline, Gabepentin, tizanidine, hormones, herbs, steroids, vitamins, supplements …failure after failure.

My heart is broken. I’m sure I am broken. The grief is so real. This disorder is so real.

I have botox with my neuro in a couple of days and I’ll have to talk to her about stopping Aimovig. I believe it’s made my migraines worse …I hurt and struggle with fatigue all day long. I believe it’s made me gain weight. I can’t believe how much I hurt. And I don’t want to.

There are 2 more CGRPs newly released that I can try. But I’m too weary. And I’m too sad. I need some grieving time …and hopefully I can recover.