The DISSERVICE to Addiction

Addiction is real. A real mental disorder that deserves care and understanding and action. But thus present US govt stance on Opiates (and growing number of other drug classss), there is a terrible disservice done to Addiction, Tools of dealing with Pain, Chronic Pain – EVERYONE.

TWOLA, 4/22

Opiates and other medications are simply tools. They are not killers, they are not evil, and everyone reacts very differently to medications. Allowing our US legislators free reign to make laws regarding these tools, we invite individuals who know NOTHING about Healthcare our OUR individual health care into our chart, our PRIVATE lives. No no no no no!

I am not unsympathetic to human beings who have lost their lives to opiates – in whatever their capacity – illegal fentanyl, overdosing on prescriptions, etc. Every loss of life is tragic. There is a process where our country could be more careful with opiates. But it’s a no-go inserting government into a patient-doctor relationship. My doctor and I know the tools to care for my health. The US legislator does NOT.

To me, there is only a Libertarian POV for medical care. Not everyone is an Addict. The population should not be scared to death about treating temporary or chronic pain. Doctors’ licensing shouldn’t be threatened for good and appropriate healthcare. The government does not belong in between me and my physician.

I cannot wait for the pendulum to sway back to Sanity. Get the government OUT of my healthcare!

TWOLA, 4/22 There are SO many questions about this info blurb. “Opiates kill more than 136 Americans a day” – Suicide? Illegal opiates? Addiction? Accidental overdose? Poisoning?

Addiction is real. It is NOT the same thing as Dependence. Not everyone is even on the spectrum of Addiction potential! Treating a medication as an evil thing is just dumb; medication is a tool. And mistreating temporary and chronic pain inadequately because of a creation of an Opiate War is criminal. Advocate for genuine, positive, individual, wellness-oriented, collaborative patient healthcare.

#PatientsNotAddicts, #Chronicillness, #ChronicMigraine, #ChronicPain #CMAware, #SpeakYourMigraine, #opiatewar, #AddictionVSDependency, #waronopiates, #MedicineIsATool, #GovernmentOUTofmyHealthcare, #DoctorPatientHealthcare, #EndtheOpiateWar, #KeepIllegalFentanylOUT, #getoutofmyhealthcare, #Libertarian

Do I look sick? I am a Face of terrible & life-changing Chronic Illness 💜

Don’t get Chronic Migraine

Oh myyyyyy

Don’t get #ChronicMigraine.

It’s so dumb and wastes a ridiculous amount of time and energy. The shadow that slips into your life with intent to take over everything.

If #Migraine is something you experience, take it seriously… get proactive! Track it, find your triggers, communicate with your health care provider. It’s not all about pharmacology – there are simple life changes, vitamins, minerals and herbs that can make a serious difference.

However, when Migraine episode strikes, don’t “chase it” or “push through.” SLAM IT with appropriate medication and treatment. Improper and inadequate migraine treatment is the root of Chronic Migraine.

#MigraineAwareness djk #MyBeautifulMigraine #SpeakYourMigraine #PatientsNotAddicts #InvisibleIllness #Chronicillness

Why Some CGRPs Work When Others Don’t |

By now, most people in the migraine community have heard of, if not tried, the CGRPs – a new approach in the prevention and treatment of migraine. After a bit of a drought in the development of effective medications for this prevalent condition, many migraineurs were lined up and chomping at the bit to see what all the hubbub was about. And there was quite a lot of buzz about this new treatment. The positive results from the trials were rumored to be significant and potentially life-changing.

A recurring question about CGRPs

It’s now been two years since the three variations of the CGRPs were introduced (Aimovig, Ajovy, and Emgality) and beyond the troubling stumbling block related to its high expense, one major question seems to keep reemerging: “Why does this treatment work so well for some and not others?”

CGRPs don’t work for everyone

Why not me? With hopes raised high by the success stories of others, many of our community members expressed disappointment after trying one of the CGRPs to no avail. Such a normal response to be let down after hearing about the dramatic improvement of others when you don’t achieve a similar outcome.

If at first you don’t succeed, try, try again. However, we have learned that not all CGRPs operate in the same way. So, if one of the three CGRPs is ineffective, it doesn’t necessarily mean that another will not work.

One size does not fit all with migraine

Of course, there’s also the potential outcome that none of the CGRP treatments will work for you. Or that, rather than stopping your attacks dramatically and entirely, this treatment may improve your condition just slightly. Migraine works so differently in all of us so that what is an effective strategy for one person can be completely ineffective for another.

A multipronged approach to migraine treatment

For most migraineurs, there is no such thing as a simple cure or easy fix. Rather, the most effective strategy is a multipronged one, involving multiple approaches which include various medications and countless life alterations (diet, sleep, and exercise) that, coupled together with time, effort, energy, and lots of patience, will result in a gradual improvement in this complex neurological condition that is migraine.

I wish the CGRPs had been the magic cure for me – I trialed Aimovig and Emgality before my insurance made me choose between CGRP or Botox. The CGRP migraine abortive Ubrevly has been quite helpful during attacks – about as reliable as triptans. But none of the preventative monthly injections worked. 😒

Sometimes I Just Don’t Feel Well, and I Don’t Know Why |

This is the most EXHAUSTING and FRUSTRATING part of Chronic Life. It started for me in 2010, I’d get to work and would be sleepwalking from 8 am until at least 12 noon. It was like the flu without fever and respiratory problems – just incredible achiness and complete exhaustion. Baffling, I researched and grilled my medical team. No answers. I’m almost 100% sure it’s related to Rheumatoid Arthritis and post/prodrome.

The most upsetting part is when I finally have a break from migraine, I want to do do do! But my body is made of concrete and I’m trying to move through quicksand.